When The Right Decision Makes You Sad

Today Carol Burris shares her journey on how she has learned to take time and enjoy this season, without being overwhelmed with your to-do list. 

As I took my predawn walk this morning, it started to flurry. Single, widely spaced snowflakes danced and sparkled in the street lights and I though of the joy and excitement of my granddaughters when the snow starts to fly. Which reminded me that once again I wasn’t there with them to share and bask in their delight. Which led my thought to Christmas, another moment I would miss. Most of the time I’m okay with the distance between us. After all, a few years ago when my husband retired, we cut that distance by more than half. When our children were growing up we lived much further away from their grandparents and only had “bigger than nuclear family” Thanksgivings and/or Christmases a handful of times. So this is my family’s normal, right? Between the distance, the uncertainty of winter weather and overbooked holiday travel times, we have chosen to play it safe and stay home. It’s an expensive time to travel and not something in either of our budgets. To say nothing of the logistics involved – our two elderly dogs who can’t be boarded, a husband who doesn’t like to leave the house empty especially in the winter, their four girls, two cats, three piglets and 25 – I think – ducks. No easy answers here. For us, it is the right decision. But this morning, just for a little while, I found myself longing for the situation to be different. I know I have thought about it more in the last several years because of the community in which I live. Here, high school homecoming is a Big Deal and is more for the alumni than for the current students. People grow up here and, if they leave, they eventually come back. At my church, there are two, three and even four generations of families sitting together in the pews every week. My little nuclear family feels so small sometimes. A week or so has passed since I began this piece. Thanksgiving has come and gone, along with two ER visits (one with my son and one following a fall for me) and Christmas is staring me in the face. But at least at this moment, I am at peace with having only phone or Skype calls with the girls on Christmas. Each family is different. Sometimes each year is different. But all of those different choices are valid as long as they work for (most of) the people involved. Nothing ever says this is how it must always be. I hope you take time and enjoy this season, without being overwhelmed with your to-do list. I hope you find the right way to celebrate with your family that works for you.

Carol Burris is a wife, mother, grandmother, reader, quilter, knitter, breast cancer survivor, and volunteer. She unschooled two children and continues to unschool herself. She’s managing an impossible schedule with only the shopping almost done and nothing else prepared for Christmas!

 

The Truth about Forever – Mothering a Special Needs Child

The Truth about Forever – Mothering a Special Needs Child

“I’ll love you forever
I’ll like you for always
As long as I’m living
my baby you’ll be.”

This refrains follows the growth of a child in Robert Munsch’s book Love you Forever.

We watch the son grow from a baby to an adult while at each stage of development his mom confirms her forever kind of love. At the end of the book, the adult son comes and gives the same message to his dying mom and then carries on the tradition with his own child.

And that’s the way it is supposed to be.  Of course we will love our children forever.

But forever takes on a whole new meaning when you have a child with special needs.

It is every parent’s expectation that your children will one day grow up and leave home and your role as a parent will not end but it will change.  But for some of us, we know fairly early in the game that is not likely to happen.

“Special needs” is a huge basket category covering a wide range of issues and difficulties and I’m not going to go into that here.  Some special needs kids will be able to make their own way in the world, working, living on their own, marrying and raising their own families.   But some will not; and of those some families choose to keep them at home rather than send them to group homes or other facilities.

No judgments here.  Nothing is right or wrong.  Each family makes the best decisions they can for their family.  I’m only writing about my own experience.  Our son is able to make his own way in the world on some things but not on everything.  Independent living for him would not be living; it would just be existing.  We have chosen to have him continue to live with us.

So for some of us, as our friends are downsizing and planning for retirement trips, life goes on very much as it has for years.  Smaller car, nope.  We can’t do that as we have a full sized adult who still rides in the backseat.  Smaller house with less to clean and maintain?  Not really.  Fortunately he is able to help with some of that maintenance with supervision.

But what will happen when we aren’t here for him?  How can we plan for that?  The laws have changed and you can no longer establish a special needs trust, or so our attorney told us.  If he ever needs government assistance, he can’t inherit any assets from us or lose his assistance.  How can we prepare to care for him, to “love him forever?”  I wish I had some answers.

Forever is a very long time.

Carol Burris is a wife, mother, grandmother, reader, quilter, knitter, and volunteer.  She unschooled two children and continues to unschool herself.  She occasionally blogs at http://www.carolburris.com/life_with_nin/ about life, crafting, and her recent breast cancer diagnosis.